Your Journey Matters. Share Your Pemphigus Story With Us.

You are more than your rare disease diagnosis. You’re a dynamic person who wants the most out of life, but pemphigus frustrations like constant blisters, lengthy diagnosis time, anxiety, or emotional stress may be a struggle. Spread awareness and understanding of pemphigus by sharing your journey with us.

Let your story be told

Each Story Is Powerful. Help Us Amplify Your Voice.

This storytelling project aims to help raise awareness of pemphigus through engaging and connecting people living with pemphigus and their caregivers. Now you can build upon the community’s collective voice as you share your pemphigus story. Please use one of the prompts below to help you get started or choose a topic that speaks to you.