Your Journey Matters. Share Your Pemphigus Story With Us.

You are more than your rare disease diagnosis. You’re a dynamic person who wants the most out of life, but pemphigus frustrations like constant blisters, lengthy diagnosis time, anxiety, or emotional stress may be a struggle. Spread awareness and understanding of pemphigus by sharing your journey with us.

Each Story Is Powerful. Help Us Amplify Your Voice.

This storytelling project aims to help raise awareness of pemphigus through engaging and connecting people living with pemphigus and their caregivers. Now you can build upon the community’s collective voice as you share your pemphigus story. Please use one of the prompts below to help you get started or choose a topic that speaks to you. 

Have you experienced stress because of your pemphigus diagnosis?

Tell us about the effect that pemphigus has on your physical and emotional health. 

How has your life changed since your pemphigus diagnosis?

Tell us what really matters to you now.

Do you know someone who has pemphigus?

Tell us how you support your friend, family member, or loved one who has pemphigus.